Testimony - Suffering from lupus at just 5 years old
Discover the testimony of Ana-Rose's mother, 9 years old, who was diagnosed with lupus 4 years ago.
I'm the mother of 9-year-old Ana-Rose, who has lupus.
I was shocked and then panicked when my daughter was diagnosed 4 years ago. The sun and UV rays became my real enemies. My mother found your site on the internet where I discovered a whole range of clothes, hats and swimwear that made things much easier for my little girl to accept.
Since lupus is one of the diseases that reacts to UV rays and therefore the sun, protection is even more important. Once the sun comes out, you have to be constantly on guard, using SPF 50+ creams, anti-UV clothing, anti-UV hats, staying in the shade between noon and 4 p.m., and so on. This daily routine as soon as the sun comes out sometimes seems restrictive to my little darling, but the fact that there are specialized lines in stores for adults and children with her type of autoimmune disease reassures her and she enjoys choosing her swimsuits, hats, etc.
Her daily routine is interrupted by school, of course, but also by follow-up visits to university hospitals, specialized clinics, and appointments with various specialists such as cardiologists, ophthalmologists, dermatologists, nephrologists, rheumatologists, nutritionists, nurses, general practitioners, and so on. They're all extremely friendly and caring, but the whole system can be extremely overwhelming when you're 9 years old.
Together with the doctors, we explained to her the characteristics of her pathology and told her that it was something rare like her and that because rare people are special, they are entitled to special areas in everyday life. Your brand has given me relief and a very welcome playful side to shopping for special clothes. Thank you so much.
Nieves
I was shocked and then panicked when my daughter was diagnosed 4 years ago. The sun and UV rays became my real enemies. My mother found your site on the internet where I discovered a whole range of clothes, hats and swimwear that made things much easier for my little girl to accept.
Since lupus is one of the diseases that reacts to UV rays and therefore the sun, protection is even more important. Once the sun comes out, you have to be constantly on guard, using SPF 50+ creams, anti-UV clothing, anti-UV hats, staying in the shade between noon and 4 p.m., and so on. This daily routine as soon as the sun comes out sometimes seems restrictive to my little darling, but the fact that there are specialized lines in stores for adults and children with her type of autoimmune disease reassures her and she enjoys choosing her swimsuits, hats, etc.
Her daily routine is interrupted by school, of course, but also by follow-up visits to university hospitals, specialized clinics, and appointments with various specialists such as cardiologists, ophthalmologists, dermatologists, nephrologists, rheumatologists, nutritionists, nurses, general practitioners, and so on. They're all extremely friendly and caring, but the whole system can be extremely overwhelming when you're 9 years old.
Together with the doctors, we explained to her the characteristics of her pathology and told her that it was something rare like her and that because rare people are special, they are entitled to special areas in everyday life. Your brand has given me relief and a very welcome playful side to shopping for special clothes. Thank you so much.
Nieves
